CRIBBS The Clinical Registry Investigating Bardet Biedl Syndrome needs YOU!
If you or someone you love has Bardet Biedl Syndrome, (BBS) it is important that you register. BBS is rare, occurring in approximately 1500 people in the USA. We can't have treatment until therapies are developed and trials are completed. We can't have research or trials until we identify those with BBS! The registry will help researchers find a CURE!