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The Bardet-Biedl
Family Network

What is BBS?
Meet Us
Contact/Join Us
Center Of Excellence
Conference June 2016

The Clinical Registry Investigating Bardet Biedl Syndrome needs YOU!

If you or someone you love has Bardet Biedl Syndrome, (BBS) it is important that you register. BBS is rare, occurring in approximately 1500 people in the USA. We can't have treatment until therapies are developed and trials are completed. We can't have research or trials until we identify those with BBS! The registry will help researchers find a CURE!

Register here

Support the Clinic for treatment of Bardet Biedl Syndrome here!

The CENTER OF EXCELLENCE for Bardet Biedl Syndrome
is enrolling patients

Click HERE for more information

To learn more about The Bardet-Biedl Syndrome family Association,BBSFA, visit us at Bardetbiedl.org

The purpose of this page is to raise public awareness of the
Laurence-Moon Bardet-Biedl syndrome.

It serves as a place for parents of LMBBS children,
LMBBS individuals and their families to meet,
exchange ideas, and offer support.