Family Network |
LMBBSA Family Conference
When: June 18 - 19, 2010
Where: Duke University, Nanaline H. Duke Center
Click to see an interactive map here
Hosted By
Nicholas Katsanis, Ph.D.
Professor, Cell Biology, Duke University
Dr. Nicholas “Nico” Katsanis is known from previous LMBBS Family Conferences for his interesting and engaging way of explaining what he has discovered about BBS and how to make sense of many of its complicated details. He is also known for an amazing number of results about BBS and an ambitious and hopeful set of goals. He is on the faculty in the Department of Cell Biology at the Center for Disease Modeling, Duke University Medical Center, Durham, North Carolina.
Dr. Katsanis
Professor Philip Beales,
Dr. Philip Beales has been involved in BBS research for decades. He and Dr. Katsanis have published over 25 papers together in addition to their work with others. He is the medical advisor for the LMBBS Society in the United Kingdom. He is Consultant Clinical Geneticist, Guys Hospital and Institute of Child Health, Great Ormond St. Hospital, London, England. He is the co-author of a comprehensive descriptive paper on BBS characteristics. It is located here
Professor Beales
Robert M. Haws, MD,
Pediatric Nephrology, Marshfield Clinic, Marshfield, WIDr Robert Haws is a pediatric nephrologist (children's kidney specialist) with a longterm interest in Bardet-Biedl syndrome. He completed his undergraduate training at Brigham Young University and medical school at the University of Utah Medical School. He received post-graduate residency training in pediatrics in Dayton, Ohio at Wright-Patterson Air Force Hospital and Dayton Children's Hospital followed by fellowship training at the University of Texas Southwestern Medical School in Dallas, Texas in pediatric nephrology. His first opportunity to diagnosis and care for a child with BBS came shortly after finishing his fellowship training with a very special infant, Ashley Morris. Since that experience he has had the opportunity to provide care for a number of other children with BBS. He has been involved in all stages of kidney issues for children with BBS ranging from the increased urination to impaired kidney function and ultimately the need for dialysis and kidney transplantation. Dr Haws is currently practicing in pediatric nephrology at the Marshfield Clinic in Wisconsin with an ongoing interest in improving the diagnosis and treatment of children with BBS. Dr Haws and his wife, Kellie, have nine children including a daughter with Asperger syndrome (a form of autism) and blindness. That opportunity has provided an important personal perspective on the challenges faced when working with teachers, school administrators and health care providers for children with special needs.
Dr. Haws
Individual attendance: $30.00
Family Attendance (Immediate family): $50.00
This includes Friday night Family Gathering and Saturday Sessions
We need to know the total number of persons attending for planning purposes!
Friday afternoon tour of Dr. Katsanis' laboratory
There will be an opportunity for persons with BBS to have panoramic dental exam. Indicate if you are interested in participating in this research opportunity
To register please fill out and email the registration form. Checks or money orders can be sent to:
LMBBS Family Conference Registration
PO Box 9103
Surprise, AZ 85374
Register here
Click below to reserve your room now
Marriott Reservations
Reserve your room now! June is just around the corner!
For more information please email Mary