This is
Geneva!

Geneva is 12 years old. She was born in 1986 and diagnosed with Bardet-Biedl in
1991.
She is starting to take on more responsibility for herself and is feeling a sense of
pride
because of this!
She anything to do with horses or
wolves.
Geneva enjoys her therapeutic horseback riding and girl scouts.

Geneva
attends
a regular school at this time. She has a full-time aide and a number of "pull-outs" daily.
She wears hearing aides for a mild hearing loss. Hopefully this will help her spelling
and communicating skills.
Geneva receives physical therapy, occupational therapy,
speech therapy and counseling, braille technology and vision. Her academics are
modified to
fit her needs. This fall Geneva started playing the trombone
and she LOVES it!
Shoes are continually a problem, both width and depth. Geneva's mom, Becky used to
make Geneva's clothes, but as she has grown older, she likes to wear what the other
kids are wearing. Becky says that LEE makes a jean with elastic on the sides that fit
better. When Geneva starts to outgrow these her mom can take the elastic out and get
more wear from them. Geneva now prefers to wear big T-shirts and jeans. Sometimes
they can find ladies petite that fit and occasionally maternity clothes.
Geneva is improving with her cane skills. She is no longer so afraid of the dark. She
has no night or peripheral vision, and her color vision is not so good either. Her central
vision is about 20/300 in bright light.
Geneva is on the waiting list for a sleep study
at Stanford University. She has cysts on her kidneys but they are still functioning well.
She has day and night-time accidents. Geneva knows to stay away from caffeine
because it effects her bladder control.
Geneva is 5 feet 2 inches tall and
weighs 172 pounds. She knows what a healthy choice of diet is but sometimes still
sneaks food. (Don't we all?)
Geneva and her mom have an 8 year old
golden retriever named Tigger. They love to travel, read and snuggle together. Becky
has been looking into the schools for the blind in her area and across the country!
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