James has been blessed with an
active family of boys!
He
has spent his childhood playing sports but despite all the activity (and noise!) James still
lagged behind
developmentally in expressive language. He was a chubby baby, but no more so than his
brothers. He
was a happy baby and toddler, easily satisfied.
James attends middle school now
and it is
more difficult for his needs to be met due to his visual limitations. At the age of 8 James
was found to
have retinal irregularity. He had been treated in the past for significant myopia.
James
was referred to
an ophthalmologist who decided to do an VEP (visual evoked potential). The doctor at
this time
decided to watch James for a year and see if any visual loss occurred. This waiting was
difficult for
his family, especially since the diagnosis was such a surprise.
His mom, Pamela said that
she felt
overwhelmed and a bit taken a back but that they somehow got through the year of everyday
living
with this life changing decision hanging over their heads. She says that while it isn't so hard
once you
get used to it, it is the getting used to it that is hard.
The visit to the specialist a year later
confirmed
the diagnosis. James vision had changed and worsened. James had lost night vision,
peripheral vision
and color vision. He was having trouble navigating, walking into people or trees and
stumbling over
objects in poor lighting.
James continues to play sports on a non- competitive
basis. He
swims as well. He still plays some football, basketball and soccer. He is troubled by what
looks like
clumsiness, but he persists with the help of his family and some teachers and caring people at
the local
YMCA.
This year is particularly difficult for James. Peer acceptance is difficult for him. James does not know anyone who experiences day-to-day living in the same way he does. James' parents want him to meet his potential. He has many roadblocks on the path however, specifically an academic environment which would enhance his reading and language comprehension, a computer, and especially a social group where he can interact as an equal.