This is Keith

Keith1
Keith is 15 years old, born in 1982. He was diagnosed with LMBBS at the age of eight.

Keith was a full term baby but had some problems at birth. He experienced stress before birth and the doctors decided to induce labor. Keith was born with his stomach and intestines outside his body. He also had an extra toe. He weighed 4 pounds and 6 ounces. The pregnancy was a normal one.

Keith was transported to the University hospital and had surgery to put everything back in place. His family jokes that he has a "Man Made belly-button!"

Keith2
Keith recovered quickly from his surgery and was home within 2 weeks! The doctors at this time said it was a chromosomal imbalance that caused his problem and it happens once every 5000 births! (WRONG!)

Keith had his extra toe removed when he was 4 months old along with a double hernia operation. He was a good baby but slept very little. As he got older his mom, Carol, realized he was having nightmares! She was told that babies do not feel pain but she does not agree with this.

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Keith matured very slowly. He gained weight extremely fast even though he didn't eat more than a normal baby. He started wearing glasses at the age of 3 and seemed to have a lot more learning problems than his brothers. He was very dependent on his mother for everything.

Keith was diagnosed when he was 8 years old. It took one eye doctor to finally put things together! Keith and his older brother Jason look like twins and the doctor finally diagnosed LMBBS. This explained a lot of their learning difficulties and delayed development in school and out.

Keith is now 15 years old and is a very complex kid! He is a pre-college reader but third grade in math. He loves the Discovery channel and Science-Fiction, computer or any thing to do with technology. He is a whiz at trivia games but forgets everyday things ten minutes after they happen. He has learned Braille in a very short time and takes mobility training.

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Keith is very quiet and getting information out of him is difficult. He is sweet and all his teachers love working with him because he is so agreeable! He has a very easy going personality. He is not the most active kid but is starting to do better in that area. He is still quite large but is also very tall, nearly 6 feet! Like his brother Jason, he is a gentle spirit.

Around the age of 11, Keith started walking very stiff legged. His family thought it was because of his size. Since that time, he has been diagnosed with ataxia. His balance is poor and of course he also has low muscle tone. The doctors cannot tell how progressive the ataxia is so his mom is interested in hearing from others who have this same symptom of LMBBS.


These are the symptoms of Ataxia that Keith has :

  • Coordination problems
  • Staggering
  • Difficulty rising from sitting
  • Curvature of the spine

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